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Kidneys And Krap - Section 2

Kidneys And Krap 

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  #11  
04-29-2015, 12:13 AM
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Re: Kidneys And Krap

Best of luck to you. Let us know how things go and thank you for the education.
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  #12  
04-29-2015, 12:18 AM
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Re: Kidneys And Krap

DaFuq- I sure hope whatever you have done works for you, and painlessly at that!
Those first pics made me want to pop the cysts like bubble wrap!
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  #13  
04-29-2015, 09:25 PM
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Re: Kidneys And Krap

bummer
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  #14  
04-30-2015, 05:46 AM
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Re: Kidneys And Krap

agramAbdominal diagram:
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  #15  
04-30-2015, 06:38 AM
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Re: Kidneys And Krap

I was diagnosed with PKD when I was 13, and had a grand total of 3 tiny cysts.
Fast-forward to now, at 48 years old, and the disease has completely overwhelmed both of my kidneys and my liver.
Your average kidney is about the size of your fist-mine are a little bigger than a football.
As you can see from the x-ray, they do a pretty good job of compressing your internal organs. It takes very little food to fill me. An average meal for me consists of a banana, 1/2 a piece of toast and a yogurt. That keeps me full for most of the day.
I started this thread because a few people were interested in the things that will be happening next.
I've been in kidney failure for awhile now. I'm currently running at about 50%.
But this weekend a lot of things changed very rapidly for me.
Very sorry to hear that. If I were a little smarter and a lot more applied I'd be a nephrologist. Astonishing organs. When learning about them in my non-nephrologist course, I was most amazed by the fact the nephron (smallest functional unit of the kidney) filters *all* the liquid part of blood out leaving only protein to return to circulation, and then reclaims 99 per cent of it. It's easy to think they simply draw the nasties out of whole blood but they go in hard, suck out the lot, and pick what to reject. Specialised cells called podocytes have feet which wrap around the knot of capillaries which feed the nephron, featuring slits which can be widened or narrowed to change the filtration ratio. I could go on.

Apparently 3D printing is delivering new dialysis filters which can be re-used. I assume you're on dialysis now - it's amazing dialysis exists, but I hope you find a transplant.
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  #16  
04-30-2015, 06:44 AM
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Re: Kidneys And Krap

Well, this has been interesting..
The tests results were interesting, to say the least.
Apparently a lot of the symptoms I suffered at home was due to the fact that, because of the weight of my kidneys, I split the entire length of my Linea alba (a connective tissue/tendon that keeps your "abs" or Rectus muscles together) from my breast bone to my pubic bone.
The sudden shift of my internal organs is what caused a lot of my symptoms.
They can not repair it surgically because the weight of my kidneys would just rip it open again, so for right now I'm in a full brace that goes from my sternum to my pelvis.
I'm just tired a lot.
I'm putting up a few pics so you can see how big a polycystic belly can be.
Damn...do I look like 10 mile 'o rough road,
http://i1184.photobucket.com/albums/...pser2opa6a.jpg
http://i1184.photobucket.com/albums/...psnjrwdsvu.jpg
http://i1184.photobucket.com/albums/...psndcosxub.jpg
http://i1184.photobucket.com/albums/...pse2wodhe1.jpg
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  #17  
04-30-2015, 07:55 AM
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Re: Kidneys And Krap

Well, this has been interesting..
The tests results were interesting, to say the least.
Apparently a lot of the symptoms I suffered at home was due to the fact that, because of the weight of my kidneys, I split the entire length of my Linea alba (a connective tissue/tendon that keeps your "abs" or Rectus muscles together) from my breast bone to my pubic bone.
The sudden shift of my internal organs is what caused a lot of my symptoms.
They can not repair it surgically because the weight of my kidneys would just rip it open again, so for right now I'm in a full brace that goes from my sternum to my pelvis.
I'm just tired a lot.
I'm putting up a few pics so you can see how big a polycystic belly can be.
Damn...do I look like 10 mile 'o rough road,
http://i1184.photobucket.com/albums/...pser2opa6a.jpg
http://i1184.photobucket.com/albums/...psnjrwdsvu.jpg
http://i1184.photobucket.com/albums/...psndcosxub.jpg
http://i1184.photobucket.com/albums/...pse2wodhe1.jpg
Those symptoms sounded like you were in shock. Yuck.

Oh dear goodness your abdomen. That must be horrid!

Can't they just remove both and put you on home PD?!? My aunt was on peritoneal dialysis for many years and did well.

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  #18  
04-30-2015, 12:01 PM
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Re: Kidneys And Krap

My father died from PKD, and many members of my family have eithet passed away or are still fighting it. Are you on the list for a donor kidney, or are you on dialysis yet, DaFuq?
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  #19  
04-30-2015, 12:37 PM
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My father died from PKD, and many members of my family have eithet passed away or are still fighting it. Are you on the list for a donor kidney, or are you on dialysis yet, DaFuq?
LHG, correct me if I'm wrong, but I thought your father died of cancer as well.
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  #20  
04-30-2015, 05:17 PM
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Re: Kidneys And Krap

Thank you so much for sharing your story (and pics) here. Wish you all the best with your recovery!


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