[prax22a]

You're turning into a Borg

[Sharon]

Originally Posted by mrh2008 ↗

Brain, back, toe... its all the same. Honestly, I haven't even read your post. I think I'll keep it that way. Feisty ladies are the best.

I get you mrh No hard feelings You're just a wee monkey

[Sharon]

Originally Posted by **BUTTERFLYLOVE** ↗

If you do ask your surgeon please ask him to order two of them and post the other out to me ASAP!

*NOTED*

The new model is implanted in your arse cheek and is rechargeable and lasts about 8 years. Good times

[L1v1ngD3ad]

Amazing story and one strong gal you are!

[Cabriolet]

Damn, I didn't know that there was a many of use going around with Medtronic hardware in them. I just had to have my new large pump replaced when it failed after 16 months. My first one worked for just under 6yrs, it was the 18ml version, then I got the "big" 40ml one and it crapped out wayyyy tooooo soon. I had to have an emergency pump replacement in March. i am glad to know that many people are actually getting good results with their units. Take care...

[Sharon]

Originally Posted by Cabriolet ↗

Damn, I didn't know that there was a many of use going around with Medtronic hardware in them. I just had to have my new large pump replaced when it failed after 16 months. My first one worked for just under 6yrs, it was the 18ml version, then I got the "big" 40ml one and it crapped out wayyyy tooooo soon. I had to have an emergency pump replacement in March. i am glad to know that many people are actually getting good results with their units. Take care...

Wow Cabriolet, what is your pump for???

I was offered a big one for Baclofen once for my leg spasticity but chose the tablets instead. A battery in one side and a pump in the other would look ridiculous

[Azimuth]

Sharon, I know from reading your post that your bleed was due to a malformation and not a clot, right? But I'm curious. I had a bleed also, in 2009 and had a inferior vena cava filter placed while I was in coma. This is because of the high-risk I have of blood clots, and apparently these filters will protect against pulmonary embolism. I was wondering if you also had one and if you have ever had any problems or pain because of it?

Isn't walking divine? I have to say, it's probably one of the things I just took for granted, and now when it's a beautiful day out, a walk down the block is just lovely! Your story is very interesting, and I'm so glad to hear you can walk too! You go girl! (I was told I wouldn't be able to, either. But I can.)

[Sharon]

Thank you so much for your post azimuth :) I'll respond in red text within as it is easier

Originally Posted by azimuth ↗

Sharon, I know from reading your post that your bleed was due to a malformation and not a clot, right?
That's right, mine was a rare birth defect called an arterio-venous malformation. A weak tangle of vessels.

But I'm curious. I had a bleed also, in 2009 and had a inferior vena cava filter placed while I was in coma.
I'm very sorry to hear you experienced that horror also

This is because of the high-risk I have of blood clots, and apparently these filters will protect against pulmonary embolism. I was wondering if you also had one and if you have ever had any problems or pain because of it?
I haven't had anything fitted within my skull but do have scalp hypersensitivity from the cranial surgery. I take 75mg Pregabalin at night to help ease it and it works well. I still have pretty extreme headaches that can knock me for six! Do you have scalp pain??

Isn't walking divine? I have to say, it's probably one of the things I just took for granted, and now when it's a beautiful day out, a walk down the block is just lovely!
Oh yes hun, a simple walk nowadays is something I truly LOVE and cherish. Even just to the local coffee shop for a coffee and cake then home again, it's precious to me - and many others in our situation. Walking now is like a divine gift from God after having it almost taken away from us so cruelly. Feeding the ducks on a nice day is brilliant!

Your story is very interesting, and I'm so glad to hear you can walk too! You go girl! (I was told I wouldn't be able to, either. But I can.)
Aw very well done!!!!!!! Isn't it truly amazing how we beat the odds??? Overcame a death threat and mobility loss? That is the most amazing feeling ever experienced - to WALK again! To bathe myself, feed myself, dress myself, paint my nails, etc, etc, things people automatically do yet don't realise how heartbreaking and soul destroying it is when you can't even brush your own hair Man, people like you are who I'd LOVE to go a walk with I like going down to the Thames, having a sit down and people watching then plod home.

[Kim]

Walking is awesome. After my first major MS bout I was functionally paralyzed on my right side. Defining 'functionally' as in "All the pieces are there and they work, but the remote controls are stuck on pause." I felt pretty sorry for myself at first, but after I retrained the brain signals I was so happy that it was something I had the power to (kinda) reverse (I fall on my ass and/or head a lot) through sheer bitchiness, stubborness and goofy pysical therapy

[Azimuth]

Sharon, I take Neurontin for nerve pain, which from what I read is pretty close to the Pregabalin that you take. I'm up to 1,800 mg a day! I've got an appointment at a pain clinic within the V.A. in a few weeks--there's got to be something else, maybe something natural? There really aren't any side effects, but I still don't like to feel so dependent on the pills.

I'd love to go for a walk with you, too! I bet we'd get some looks! We could have some fun with it. And I know what you mean--I couldn't shower on my own for quite a while--there's another thing I used to do every day and not give it a thought. Now I absolutely relish it. That sounds so silly, but I don't care.

The one thing that's taking the longest to get better is my attention span. I used to love reading. Devouring a book every couple days was the norm. I think I've read one book all the way through since the event. And still I have trouble coming up with the word I'm thinking of; some conversations are excruciatingly long. I'm lucky though, most people who know what happened are very patient and just let me fuddle along. And the memory probs. ugh. How is that for you, if it's not too personal to ask?

But that's why it took me a while to get back, everything I do takes serious planning.

Thank you so much for sharing your situation! And I see there are
others of us here with similar medical things going on. I'm so glad we're all here, still breathing. Life is such an incredible journey.