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#24
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06-04-2011, 09:51 AM
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Re: Little Girl With Hippo Looking Facial Deformity
I hope this poor child - no matter how unusual she may look - finds happiness in what life she may have. I sincerely hope - however futile it may be - she's not teased to the point where she develops a personality disorder.
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#27
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06-04-2011, 03:32 PM
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Re: Little Girl With Hippo Looking Facial Deformity
This little girl well her tumour grew and grew until the point where it was life and death her are some more pics and her story Now Marlie is a 16 year old girl who was diagnosed with a facial deformity associated with a disease called Polyostotic Fibrous Dysplasia. Before surgery, the bone growth had grew from a 5 pound - become a 16-pound tumor-like mass that covered almost her entire face. It was threatening her breathing and would have eventually caused death if doctors hadn't operated. It was only because of fund raising from complete strangers that Marlie was able to fly to America for extensive operations. today the 21 year old is doing well no tumor has re grow MArlie and her family now live in america and she speaks to children in schools about her story. I am so glad I look this up and know now this child became a woman and is doing well |
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#29
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06-05-2011, 04:05 PM
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Re: Little Girl With Hippo Looking Facial Deformity
where did you find this info? the latest info i could find was 8-13-10: Haitian woman with facial tumor back for more surgery Marlie Casseus -- the young Haitian woman who had a melon-sized tumor removed from her face in a five-year series of surgeries in Miami -- is back, needing another operation. Even before the earthquake in Haiti, Marlie Casseus was having trouble breathing -- again. The 18-pound tumor that had been removed in five charity-financed operations over five years in Miami was growing back, obstructing her nose. Mostly, the young Haitian woman had to breathe through her mouth. Then the Jan. 12 quake struck her hometown, Port-au-Prince. Her mother, worried that the dust from crumbled buildings and the stench of decomposing bodies could worsen Casseus' condition, scavenged the only protection she could find: two paper face masks she soaked in vinegar and lemon juice to hide the smell. Six months later, after the flow of Haiti's trauma victims slowed to a trickle, Casseus has returned to Miami for another operation. Casseus, now 18, has become a poster girl of sorts for 30 or so other children in Haiti who have been informally adopted by a local charity, International Kids' Wonderfund (IKF), that brings them to Miami to treat their heart problems, cancer and other diseases. ``Marlie is amazing,'' said Janelle Prieto, IKF director. ``Her confidence has completely grown despite all her problems. She's a typical teenager -- very sassy, knows it all but is very sweet and charming.'' But the young woman's life was upended by the earthquake. Her house collapsed before her eyes, killing an aunt who was sleeping inside. Her family, unable to find housing in Port-au-Prince, is scattered. Her older sister is living with a distant cousin outside the city. Casseus, her mother and grandmother are living with friends two hours outside Port-au-Prince in the village of Petite Riviere de L'artibonite. She's no longer in school, and gets little healthcare in the devastated country. Still, Dr. Jesus Gomez, the University of Miami/Jackson Memorial Hospital oral surgeon who did most of her past surgeries, is optimistic. Casseus' current problem is regrowth of a tumor related to the rare genetic condition Polyostotic fibrous dysplasia, which also has bowed her legs and distorted her arms, hands and fingers. Her face is still distorted, but the tumor no longer is visible. ``It's a recurrence. We need to remove the mass that's affecting her nasal cavity,'' he said. ``But she's 18 now. When she has completed her skeletal growth, the disease should stop. She's near that point now.'' Starting in 2005, Casseus had undergone five facial reconstructive surgeries that removed a melon-sized tumor that covered most of her face. Her mouth and nasal passages were blocked before the initial surgery. She couldn't speak then, and could eat and breathe only through one narrow passage. With the tumor's return, she again began to have difficulty breathing. When Casseus returns to Haiti, it won't be to the little village two hours outside Port-au-Prince. ``It's not a suitable place,'' said Ginette Eugene. Where will she go? ``We don't know.'' http://www.miamiherald.com/2010/08/1...e-surgery.html |