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#22
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09-29-2011, 05:10 PM
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 My Rank: CORPORAL Poster Rank:1671 Female Join Date: Dec 2009 Posts: 323 Mentioned: 1 Post(s) Quoted: 45 Post(s)
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Re: Henoch–Schönlein Purpura- My Legs!
Yes, I always have taken a multi vit/mineral supplement- I run and do a lot of sport so my diet needs to be really good. I don't eat much red meat- mostly fish and chicken and eat a lot of fresh fruit/veg.This is why I was so distressed when I first got this coz couldn't understand why someone healthy could get it but it seems anyone can. I'm taking extra vit C at the moment to help with wound healing and just to give immune system a boost (although it seems it has a bit too much of a boost as it is lol!)
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#23
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09-29-2011, 05:23 PM
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 My Rank: MAJOR Poster Rank:58 guess Join Date: Dec 2009 Posts: 25,543 Mentioned: 4 Post(s) Quoted: 1238 Post(s)
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Re: Henoch–Schönlein Purpura- My Legs!
i found these two articles at Livestrong that you might find interesting. no supplement is a cure, or i would be completely healthy myself, but they are helpful. http://www.livestrong.com/article/20...y-in-arteries/ http://www.livestrong.com/article/13...blood-vessels/ discuss them with your doctors first of course! my doctors know about all the supplements i use and are supportive. |
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#24
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09-29-2011, 05:25 PM
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| My Rank: MAJOR Poster Rank:58 guess Join Date: Dec 2009 Posts: 25,543 Mentioned: 4 Post(s) Quoted: 1238 Post(s)
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Re: Henoch–Schönlein Purpura- My Legs!
oh, and just as there are foods that boost inflammation, there are foods that help decrease it. you can google that.
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#28
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11-23-2011, 06:36 AM
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 ♚ Legacy Gold Member ♚ Poster Rank:194 Female Join Date: Nov 2009 Posts: 7,754 Mentioned: 5 Post(s) Quoted: 707 Post(s)
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Re: Henoch–Schönlein Purpura- My Legs!
Ewww, that's disgusting! Those toe nails need a serious pedicure.  Seriously, I am glad your legs are getting better, it looks nasty. |
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#29
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11-26-2011, 05:04 PM
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 My Rank: PRIVATE FIRST CLASS Poster Rank:4362 Female Join Date: Dec 2010 Posts: 68 Mentioned: 0 Post(s) Quoted: 2 Post(s)
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Re: Henoch–Schönlein Purpura- My Legs!
I was just diagnosed with episodic purpura pigmentosa chronica. I'm only 17, too. SO basically I get episodes of these things everywhere on my body except my face (none there yet, thankfully).
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#30
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11-26-2011, 06:44 PM
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| My Rank: CORPORAL Poster Rank:1671 Female Join Date: Dec 2009 Posts: 323 Mentioned: 1 Post(s) Quoted: 45 Post(s)
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Re: Henoch–Schönlein Purpura- My Legs!
Been meaning to update this for ages. It's been 3 months since I was diagnosed and since the first rash appeared. I ended up in hospital for a week on morphine as I had severe abdominal pain caused by this- basically I was bleeding into my bowel and stomach and the blood vessels in my abdomen had gone into spasm. I was put on high dose steroids and for the last 6 weeks or so have been weaning off them- causing all sorts of horrible side effects. I have this for life and hope to be in remission soon but I still have rashes coming and going- will update photos soon. Luckily it doesn't affect my face either. I am just thankful that my kidneys are still healthy- only minimal blood in urine.
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