[Seven Of Nine]

There's no 'contribute to thread' here and I didn't want to drop a bunch of new pics a long way into my older thread because I'm seeking advice.

Anyhow, it's worse than it's ever been, these pictures were taken November 18th. If anyone has knowledge, specifically regarding a connection of Raynaud's to Beta Blockers, could you please PM me? I started taking Beta Blockers (for a fast irregular heart beat) about 2 weeks ago and they've turned my world around so much. I hate to think I have to stop taking the heart meds that seem to have my life back on track ...

Here is a link to my thread earlier this year. It is also affecting my fingers again. http://www.documentingreality.com/fo...isease-101359/

[mintycbo]

I don't have the disease, nor do I take beta blockers. (YET! They think I'm a lab rat at times. lol)
BUT I think you need to get ahold of your doc asap..and if he/she is giving you a run around? time to find a new one...
(pics of your hands in your first thread, looked no where near as bad as your feet do from this,all pulmonary of course. My doctor said I have "Clubbed fingers" from smoking, that's pulmonary..you have them from your Raynaud's.)

[carkees]

I remember an earlier post of yours about this. I'm sorry that it's gotten this bad. Unfortunately I can't help you, but I agree with mintycbo. Go see the doc!

[Seven Of Nine]

Originally Posted by mintycbo ↗

...(YET! They think I'm a lab rat at times. lol)...
...My doctor said I have "Clubbed fingers" from smoking, that's pulmonary..you have them from your Raynaud's.)

Yes, I feel as if I'm a lab rat at times also. Do you have some posts in here talking about things you've experienced? I'll search later today! Thanks for the advice.

Originally Posted by carkees ↗

I remember an earlier post of yours about this. I'm sorry that it's gotten this bad. Unfortunately I can't help you, but I agree with mintycbo. Go see the doc!

Thank you, I appreciate your words and I'll try to get in to see my Dr. I'm not booked again until the 16th of December with my Physician and I don't think I should wait that long but she's forever booked ahead.

hmmmmm, maybe I can get a paid medically required move to a location that is warm all year round ;) as the cold aggravates this terribly.

[collaredgirl65]

I have had this problem with my feet for quite some time. I don't take beta blockers and can't help you there, but I do wear compression hose during the winter and it has greatly improved my feet. I found that the sock/knee high ones didn't work. I wear the full stocking and it has made a vast improvement for me. But still talk to your doctor first, I have his ok to wear them.

[Sharon]

I'm so sorry to read of your worsening condition

My cousin has this and she has to wear thermal underwear, socks and gloves most of the time. She finds good quality silk thermals are excellent for a bit of relief and they were cleared by her doctor.

One major side-effect of beta-blockers (I'm on the bb propranolol) is a lowered BP and it can make you really woozy. I'm no expert and cannot offer advice other than to see your doctor and discuss it on the 16th Dec. They may try you on the minimum doseage?

Keep strong xx

[mintycbo]

Originally Posted by Sharon. ↗

I'm so sorry to read of your worsening condition

My cousin has this and she has to wear thermal underwear, socks and gloves most of the time. She finds good quality silk thermals are excellent for a bit of relief and they were cleared by her doctor.

One major side-effect of beta-blockers (I'm on the bb propranolol) is a lowered BP and it can make you really woozy. I'm no expert and cannot offer advice other than to see your doctor and discuss it on the 16th Dec. They may try you on the minimum doseage?

Keep strong xx

That beta blocker is supposed to make raynaud's worse. (Propranolol - aka the wonder drug...)

http://en.wikipedia.org/wiki/Propranolol

http://doublecheckmd.com/EffectsDeta...11968&eid=7143

Then again, I'm not a physician (but that second link does say bad things about it's use in your condition).

Been here for a bit, but still no posts..other than posting in other's.. Been wanting to post the aftermath of my last surgery..not sure which video format to use.

Hope you get the treatment that helps you best.

[Faline]

Looks painful

[Sharon]

Originally Posted by mintycbo ↗

That beta blocker is supposed to make raynaud's worse. (Propranolol - aka the wonder drug...)

I have it for vascular migraines and it works well for me :)

I told WinglessAngel I was on the same type (not brand, thankfully it seems!) of medication as her so she could relate her side-effects with mine - we discussed it via pm

[Rusty666]

ouch