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#21
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10-01-2014, 10:04 PM
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 My Rank: LANCE CORPORAL Poster Rank:1822 Female Join Date: Nov 2013 Posts: 282 Mentioned: 0 Post(s) Quoted: 105 Post(s)
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Re: Intracranial Hypertension
I have it, too, but I figured it out on my own before it got too bad. Only 20% loss of vision in my left eye. On the other hand, I lost a large portion of my long-term memory, and probably will never get it back. I'm glad you got a ventriculoperitoneal shunt; that has a higher success rate than optic nerve sheath fenestration. Are you sure yours is caused by excess CSF production? Have you explored Chiari malformation? Good luck, friend.
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#22
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10-01-2014, 10:07 PM
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| My Rank: LANCE CORPORAL Poster Rank:1822 Female Join Date: Nov 2013 Posts: 282 Mentioned: 0 Post(s) Quoted: 105 Post(s)
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Re: Intracranial Hypertension
Also, if you start to experience headaches, or similar symptoms to before, it could be due to shunt failure OR the shunt draining too much fluid. Spontaneous intracranial HYPOtension. Also beware of shunt infections. 80% of shunts are pulled within a year for infection. Yay, doctors. Anyway, a frontal shunt is hardcore. They usually go in the back of the head on the right and drill through a burr hole to place it. Bilateral, eh? If you need repeat surgery, though, it's super easy, so don't worry. Get better.
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#23
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10-03-2014, 12:24 AM
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 My Rank: LANCE CORPORAL Poster Rank:2327 Female Join Date: Jan 2010 Posts: 197 Mentioned: 0 Post(s) Quoted: 34 Post(s)
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Re: Intracranial Hypertension
They explored Chiari malformation, and it wasn't that. Multiple CT's and MRI's all showed the ventricles to be over filled. So far, my shunt is working and it isn't draining too little or too much fluid. I have a Strata shunt. They did two burr holes, sort of where a headband would sit on my head, and did two catheters, then those two catheters are connected and go to the Strata device. My neuro likes to do bilateral because it is like a built in back up if one catheter stops working. My headaches were so bad before diagnosis that I hadn't been to work in a month, was in the ER twice or three times a week, and basically just sat in the dark and cried.
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