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#32
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03-25-2014, 12:13 AM
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| So Fucking Banned Poster Rank:1450 Manley Man Join Date: Apr 2010 Posts: 400 Mentioned: 0 Post(s) Quoted: 71 Post(s)
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Re: I'm A 23 Year Old Female From Texas With Marfan Syndrome
Good luck. Hope you recover well. I have a degrading disease also. Ankylosing spondylitis. The bones in my hips and vertebrates are growing together. Only have a decade or so before wheelchair. I feel for you and your fiancé. The best of luck to you and congrats on the engagement. Stay tough. |
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#35
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03-26-2014, 02:35 AM
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Re: I'm A 23 Year Old Female From Texas With Marfan Syndrome
So sorry about all your troubles. I guess I look at you and I see a beautiful young woman. I'd never know you had problems if you hadn't said something.
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#39
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03-26-2014, 09:10 PM
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Re: I'm A 23 Year Old Female From Texas With Marfan Syndrome
Thanks for sharing your story- that sounds awful. The Mayo clinic is the best place to be in your situation! Hoping for a better quality of life for ya girlie.
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