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I Have a Disease- Maybe You Guys Will Be Amused by It
Documenting Reality Death Pictures & Death Videos Human Deformities & Medical Problems I Have a Disease- Maybe You Guys Will Be Amused by It

I Have a Disease- Maybe You Guys Will Be Amused by It 

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  #1  
04-03-2012, 10:49 PM
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I Have a Disease- Maybe You Guys Will Be Amused by It

Well, I dunno if DR is really interested in this, but for the sake of whatever, I'm deciding to post about it...
I have type 3 ehlers danlos. I cannot go a day without feeling my bones scraping together or my limbs barely staying in place. There is not a day when something does not hurt. Even doing the things I like to do hurts, which isn't a lot, because I can't really do shit. I'm unemployed and there's no possibility of me getting a job because of how limited I am.

Here is an explenation:

Disease characteristics. Ehlers-Danlos syndrome (EDS), hypermobility type is generally considered the least severe type of EDS, although significant complications, primarily musculoskeletal, can and do occur. The skin is often soft or velvety and may be mildly hyperextensible. Subluxations and dislocations are common; they may occur spontaneously or with minimal trauma and can be acutely painful. Degenerative joint disease is common. Chronic pain, distinct from that associated with acute dislocations or advanced osteoarthritis, is a serious complication of the condition and can be both physically and psychologically disabling. Easy bruising is common.
Ehlers–Danlos syndrome (EDS) (also known as Cutis hyperelastica[1]) is a group of inherited connective tissue disorders, caused by a defect in the synthesis of collagen (Type I or III). The collagen in connective tissue helps tissues to resist deformation. In the skin, muscles, ligaments, blood vessels and visceral organs, collagen plays a very significant role and with increased elasticity, secondary to abnormal collagen, pathology results.[clarification needed] Depending on the individual mutation, the severity of the syndrome can vary from mild to life-threatening. There is no cure, and treatment is supportive, including close monitoring of the digestive, excretory and particularly the cardiovascular systems. Corrective surgery may help with the frequent injuries that may develop in certain types of EDS, although the condition means that extra caution is advised and special practices observed.[2]
The syndrome is named after two doctors, Edvard Ehlers of Denmark, and Henri-Alexandre Danlos of France, who identified it at the turn of the 20th century.[3]
and since DR likes their pictures, here's a picture of me bending my pinky all the way to the back of my hand.

It's actually a screencap from an old video I made but I'm too annoying sounding to post that here..
hand.png
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  #2  
04-03-2012, 10:53 PM
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Re: I Have a Disease- Maybe You Guys Will Be Amused by It

Geez, that must be horrible, I'm sorry for your pain. To be restricted by pain from doing things we love is true torture. I feel for you honey.
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  #3  
04-04-2012, 01:53 AM
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Re: I Have a Disease- Maybe You Guys Will Be Amused by It

Aw that's shitty, sorry hun. :( Thank you for sharing though, that still from your video is amazing.
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  #4  
04-04-2012, 03:11 AM
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Re: I Have a Disease- Maybe You Guys Will Be Amused by It

That's just plan shittie for you. I hope it doesn't get you too down. Bendabilitey helps when robbing vending machines to suppliment your income? Japan is where's the money at . And you should post the vid we won't be mean. All the best.
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  #5  
04-04-2012, 03:24 AM
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Re: I Have a Disease- Maybe You Guys Will Be Amused by It

Sounds painful! I hope you have a good day once in a while at the very least.
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  #6  
04-04-2012, 04:32 AM
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Re: I Have a Disease- Maybe You Guys Will Be Amused by It

Wow, that sounds painful and from the pic it looks painful too.

You sound like you're trying to make the best of it though!
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  #7  
04-04-2012, 09:39 AM
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Re: I Have a Disease- Maybe You Guys Will Be Amused by It

That's just plan shittie for you. I hope it doesn't get you too down. Bendabilitey helps when robbing vending machines to suppliment your income? Japan is where's the money at . And you should post the vid we won't be mean. All the best.
since I can't actually edit the video in, here.
At least turn the volume off it's useless.
<iframe width="420" height="315" src="http://www.youtube.com/embed/FJIBzzsYetU" frameborder="0" allowfullscreen></iframe>
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  #8  
04-04-2012, 10:20 AM
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Re: I Have a Disease- Maybe You Guys Will Be Amused by It

very sorry to hear about your condition and the pain suffered...hope you have more good days than bad...:)
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  #9  
04-04-2012, 02:23 PM
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Re: I Have a Disease- Maybe You Guys Will Be Amused by It

Thanks for posting the vid. I find your voice just fine. Must be a real bitch to live with.
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  #10  
04-04-2012, 02:30 PM
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Re: I Have a Disease- Maybe You Guys Will Be Amused by It

Thanks for sharing
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Documenting Reality Death Pictures & Death Videos Human Deformities & Medical Problems I Have a Disease- Maybe You Guys Will Be Amused by It
Documenting Reality Death Pictures & Death Videos Human Deformities & Medical Problems I Have a Disease- Maybe You Guys Will Be Amused by It


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