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#31
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02-28-2009, 08:32 PM
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 My Rank: CORPORAL Poster Rank:1422 female Join Date: Dec 2008 Posts: 411 Mentioned: 0 Post(s) Quoted: 5 Post(s)
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Re: Harlequin Babies.
there was a show on the discovery channel.. they partnered with BBC and featured 4 children with Harelquin Ichthyosis.. 2 families from Britain.. weird stuff..
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#32
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03-02-2009, 08:29 AM
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| My Rank: PRIVATE Poster Rank:12617 Join Date: Mar 2009 Posts: 8 Mentioned: 0 Post(s) Quoted: 0 Post(s)
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Re: Harlequin Babies.
i think i saw the boy with it.. he has to like slather on all this petrolium jelly to his skin because his skin is so sensitive to the sun or something,, a girl does this also, or maybe i have the wrong affliction.. anyhow to look at the babies is so sad and very scary. i was freaked out by the second picture.. it seems so serreal.. i think they can lead normal lives but they have to be coated in lotion like gallons and gallons and then bandaged up.. i mean i could be wrong but fuck it.  |
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#33
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03-16-2009, 01:23 AM
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| My Rank: LANCE CORPORAL Poster Rank:2647 Female Join Date: Mar 2009 Posts: 158 Mentioned: 0 Post(s) Quoted: 0 Post(s)
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Re: Harlequin Babies.
I actually just saw a youtube video on a child who'd suffered from this and I immediately became interested. I looked up so much information on this stuff, it's actually quite sad  |
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#34
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03-16-2009, 06:53 AM
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 ★ Legacy Member ★ Poster Rank:1947 Female Join Date: Feb 2009 Posts: 258 Mentioned: 0 Post(s) Quoted: 5 Post(s)
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Re: Harlequin Babies.
I saw him on a TV show on Discovery Health Channel... he's the only one that's survived even close to this long. He has to constantly cover himself with special lotions that help his skin shed, and he has to have a feeding tube because he loses so many calories because of his skin condition that he can't eat enough to make up for it. So, I'm saying unless the Aztecs had special chemicals to help skin shed properly and used feeding tubes on a regular basis, I'm calling bullshit on that story too.
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#40
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05-10-2009, 09:00 AM
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| ★ Legacy Member ★ Poster Rank:1947 Female Join Date: Feb 2009 Posts: 258 Mentioned: 0 Post(s) Quoted: 5 Post(s)
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Re: Harlequin Babies.
That red puffy stuff is actually the baby's eyelids turned inside out because the skin is too tight. The survivor mentioned above (who is a marathon swimmer) has to cover himself with special creams constantly and also has to sleep with a feeding tube in because he can't eat enough to supply the nutrients his body is losing through his skin. The babies usually die because of infection; they are basically one big open wound.
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