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Epidermolysis Bullosa - Section 2

Epidermolysis Bullosa 

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  #11  
06-12-2013, 04:18 PM
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Re: Epidermolysis Bullosa

My goodness.
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  #12  
06-12-2013, 10:20 PM
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Re: Epidermolysis Bullosa

Well that's no Good
  #13  
06-13-2013, 10:23 PM
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Re: Epidermolysis Bullosa

Sad thing is parents will bring a kid in who has this and without fail, despite them having documentation of the condition, some busy body has the social worker and child services on hand because they're convinced the kid was scalded.

I'm amazed at #1, to live that long with it and have scarring (that we can see) on the trunk.
  #14  
06-28-2013, 03:48 PM
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Re: Epidermolysis Bullosa

  #15  
08-03-2013, 02:09 AM
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Re: Epidermolysis Bullosa

plz shoot that baby in the head and let it rest in peace PLZ
  #16  
08-03-2013, 03:08 AM
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Re: Epidermolysis Bullosa

I wonder, why do they die from malnutrition? how does this skin disease keep them from eating, even with feeding tubes?
  #17  
08-03-2013, 11:02 PM
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Re: Epidermolysis Bullosa

Horrible.
  #18  
08-04-2013, 07:37 PM
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Re: Epidermolysis Bullosa

I have heard of this. Seems extremely difficult to deal with considering the constant threat of infection.
  #19  
08-05-2013, 12:50 AM
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Re: Epidermolysis Bullosa

I wonder, why do they die from malnutrition? how does this skin disease keep them from eating, even with feeding tubes?
Because when the skin is in a constant state of repair, the body has much higher nutritional needs; such as protein. Most of these kids/adults require tube feeding to keep from being malnourished. But sometimes it is not enough :(
  #20  
08-05-2013, 05:29 AM
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Re: Epidermolysis Bullosa



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