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Death of a Child Born with a Rare Birth Defect

Death of a Child Born with a Rare Birth Defect 

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  #1  
05-19-2012, 06:31 PM
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Death of a Child Born with a Rare Birth Defect

Fox 6 WBRS, MEMPHIS, TN -
(WMC-TV) - A Mid-South family was forced to prepare themselves for the death of a child born with a rare birth defect.

The Walker family checked into the hospital knowing they would not be going home with baby Grayson James Walker.

"At first, I questioned God and wondered why he would choose us for this," said Heather Walker.

Sixteen weeks into her pregnancy, Heather Walker found out her baby had a fatal birth defect.

"It's known as Anecephaly, and this is one of the variations of what we call an open neural tube defect," said the family's doctor Roy Bors-Koefoed, M.D.

"The risk of Anecephaly is about one in 1,000 in the general population", added Bors-Koefoed.

They of course gave us the option to terminate," said Heather Walker.

The Walkers chose to carry Grayson to full term. Heather Walker said she turned to her faith to prepare herself for the days ahead.

"My husband and I, we started prayer and we knew that God knew since the beginning of time that he had us for this," said Heather Walker.

"Honestly, just seeing the strength that she had motivated me to be a better husband and a better father to my kids," said Patrick Walker.

Grayson was the family's third child.

"Ellie wanted to know why was mommy crying," said Heather Walker.

Fighting through her fears, Heather Walker talked to her children about Grayson and said she wanted to keep the experience joyful.

"As soon as they brought him around to me, all those fears and everything were taken away," she said.

With the help of non-profit organization, Now I Lay Me Down To Sleep, the Walker family had a photographer capture the hours they had with baby Grayson.

By treating his birth like any other special delivery, the Walkers hope to keep Grayson's memory alive forever.

"Yes, I'm going to cry and I'm probably going to lay in my bed some days, but I have that hope that God has got him in his hands and we're going to get to meet him again someday," said Heather Walker.

"You know, my son lived almost eight hours, and he's already done in eight hours what I could never do in a hundred lifetimes, and that's awesome," said Patrick Walker.

The Walker family thanked the staff at Methodist Germantown.

Funeral arrangements for Grayson are still pending due to the overwhelming cost to the family. Donations can be made several ways.

Contributions can be made at any First Citizens Bank Millington Branch. Donations can also be mailed to the following address:

Benefit for Grayson James Walker
PO Box 99
Millington, TN 38083

Also, anyone can donate by PayPal to graysonjameswalker@yahoo.com.

The Walkers said they also hope to raise awareness for the rare birth defect Anecephaly.

source /w video

Facebook Bans Mother for Posting Photos of Baby with Birth Defect
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  #2  
05-19-2012, 08:06 PM
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Re: Death of a Child Born with a Rare Birth Defect

Glad to see he got love and affection the few hours he was alive. Bless his soul
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  #3  
05-19-2012, 08:17 PM
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Re: Death of a Child Born with a Rare Birth Defect

What a beautiful loving and caring family. God bless Grayson.
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  #4  
05-19-2012, 09:37 PM
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Re: Death of a Child Born with a Rare Birth Defect

RIP Grayson.
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  #5  
05-19-2012, 10:22 PM
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Re: Death of a Child Born with a Rare Birth Defect

I don't know if I could have done that myself, but I'm glad that they were able to get a few hours with him. Those memories are priceless.
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  #6  
05-19-2012, 11:43 PM
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Re: Death of a Child Born with a Rare Birth Defect

This family is a group of true hero's.
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  #7  
05-20-2012, 02:14 AM
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Re: Death of a Child Born with a Rare Birth Defect

Kids aren't born prejudiced! They're taught. They just see a baby and want to hold him and love him. Their reaction is not surprising to me! The parents taught them to be very loving at a very young age.

RIP little angel! <3

GO TO FACEBOOK, IF YOU HAVEN'T ALREADY, (THE LINK IS IN THE ARTICLE), AND VOTE, "YES" OR "NO", AS TO YOUR OPINION ON WHETHER OR NOT THEY SHOULD HAVE REMOVED THE PICTURES! STUPID ZUCKERBURG!
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  #8  
05-20-2012, 02:20 AM
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Re: Death of a Child Born with a Rare Birth Defect

What a blessing!
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  #9  
05-20-2012, 08:23 AM
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Re: Death of a Child Born with a Rare Birth Defect

life doesn't come easy for some
reminds me off this from 3 years ago.
Nicholas Coke, a baby born without a brain – Nicholas Coke is a baby boy from Pueblo, Colorado and was born with just a brain stem and without a brain. Indeed a living miracle. Why?

Because this week marks his momentous benchmark on earth and was able to celebrate his first birthday. Usually, babies born like him only last for within hours.

He was born with a genetic disease called Anencephaly.
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05-20-2012, 09:09 AM
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