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#1
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01-25-2013, 12:01 PM
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 My Rank: CORPORAL Poster Rank:1619 Join Date: May 2010 Posts: 340 Mentioned: 0 Post(s) Quoted: 0 Post(s)
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The Boy Whose Skin Fell Off
Jonny Kennedy died in 2003 aged 36. He had a terrible genetic condition called Dystrophic Epidermolysis Bullosa (EB) -- which meant that his skin literally fell off at the slightest touch, leaving his body covered in agonising sores and leading to a final fight against skin cancer. In his last months Jonny decided to work with filmmaker Patrick Collerton to document his life and death, and the result was a film, first broadcast in March 2004, that was an uplifting, confounding and provocatively humorous story of a singular man. Not shying away from the grim reality of EB, the film was also a celebration of a life lived to the full. When it was first shown, The Boy Whose Skin Fell Off captivated nearly 5 million viewers and helped to raise £500,000 for the EB charity DebRA. Channel 4 is re-screening the film and re-visiting Jonny's family to see how they have come to terms with his death and the public's reaction to the film. Jonny was frank about his feelings on his upcoming death and practical about the arrangements. The film featured moving interviews with his friends and family, including his mother Edna, who had been his life-long carer and faced the prospect of Jonny's death with disarming mixed feelings, torn between relief for Jonny and knowing that she would miss him desperately. Dystrophic Epidermolysis Bullosa -    |
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#3
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01-25-2013, 02:43 PM
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| My Rank: PRIVATE FIRST CLASS Poster Rank:4127 male Join Date: Sep 2010 Posts: 75 Mentioned: 0 Post(s) Quoted: 2 Post(s)
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Re: The Boy Whose Skin Fell Off
Where are the anti-abortion fuckers now?
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#4
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01-25-2013, 04:31 PM
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 Yaut'ja Elite Poster Rank:542 Male Join Date: Jul 2009 Posts: 1,846
Contributions: 11
Mentioned: 3 Post(s) Quoted: 107 Post(s)
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Re: The Boy Whose Skin Fell Off
Still here and proud of it, fucker
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#5
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01-25-2013, 04:55 PM
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| My Rank: PRIVATE FIRST CLASS Poster Rank:4127 male Join Date: Sep 2010 Posts: 75 Mentioned: 0 Post(s) Quoted: 2 Post(s)
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Re: The Boy Whose Skin Fell Off
your probably the kind that gets off on putting a child thru such horrific suffering, and get even a bigger hard on when people say how noble and grand it is taking care of a child like that, which didn't ask to be born that way and that even whishes it had never been born.
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#6
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01-25-2013, 05:36 PM
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| My Rank: CORPORAL Poster Rank:1619 Join Date: May 2010 Posts: 340 Mentioned: 0 Post(s) Quoted: 0 Post(s)
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Re: The Boy Whose Skin Fell Off
i bet hes jorking off to this
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#7
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01-25-2013, 08:05 PM
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| Yaut'ja Elite Poster Rank:542 Male Join Date: Jul 2009 Posts: 1,846
Contributions: 11
Mentioned: 3 Post(s) Quoted: 107 Post(s)
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Re: The Boy Whose Skin Fell Off
You know, I would try to refute this statement, but I've learned that trying to argue with some one who's severely mentally retarded is a lost cause.  Yup, I'm jorking it right now. |
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#8
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01-25-2013, 10:52 PM
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 ★ Legacy Member ★ Poster Rank:1447 Female Join Date: May 2010 Posts: 401
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Re: The Boy Whose Skin Fell Off
The thing is, shouldn't a person be given the chance and choice themselves of how they want to deal with their diseases? I know I would want that. And because of this man's courage it raised money and awareness. There is choice to have abortions, and choice NOT to. Chill the fuck out. |
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#9
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01-26-2013, 12:03 AM
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| Yaut'ja Elite Poster Rank:542 Male Join Date: Jul 2009 Posts: 1,846
Contributions: 11
Mentioned: 3 Post(s) Quoted: 107 Post(s)
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Re: The Boy Whose Skin Fell Off
 63 posts and he's slinging shit around like he's a heavy hitter
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#10
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01-26-2013, 05:47 AM
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| My Rank: PRIVATE FIRST CLASS Poster Rank:4127 male Join Date: Sep 2010 Posts: 75 Mentioned: 0 Post(s) Quoted: 2 Post(s)
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Re: The Boy Whose Skin Fell Off
I did not know there was a minimum post's one has to make before one could speak there mind. Maybe it was a emotional reaction on my behalf, the point is, that when during the early stages of a pregnancy there is proof that the unborn embryo has severe defects to it that in my opinion the most humane thing to do is to terminate the pregnancy. And i'm not speaking of accidental pregnancies or after 12 weeks, the point is that most genetic defects are detectable whithin 12 weeks. It's not the teen pregnancies which occur when the youth's can't keep their legs closed or the drunken pregnancies i'm defending. You know my sister had a child with a rare genetic and metabolic condition the child got sick when it was about 1 year old and then slowly got worse and when the little angel was 4 she died, also not forgetting the pain it when't thru and the last 3 or 4 month she was completely blind, deaf an paralized. And now you are telling me that if my sister would have known it would have not been ok for her to terminate the pregnacy, so you are judging and condemning a child and mother to such a fate, what does that make you? Does it make you more or less humane then the next one who chooses not to go thru such tragedy. |
