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Baby With Harlequin Icthyosis - Section 4

Baby With Harlequin Icthyosis 

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  #31  
08-29-2014, 04:28 PM
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Re: Baby With Harlequin Icthyosis

Thanks mintycbo for the videos, excellent contribution to the subject
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  #32  
08-29-2014, 07:44 PM
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Re: Baby With Harlequin Icthyosis

Holy fucking shit. Not much shakes me nowadays, but damn. I hope the poor kid got a needle full of painkillers before crossing the rainbow bridge in mommy's arms.
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  #33  
08-29-2014, 08:21 PM
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Re: Baby With Harlequin Icthyosis

Best quality recording of the documentary on youtube.. it is in English but the video is piss poor.

This is the guy, if memory serves, who went diving.

Brought tears to my eyes to see what little things some people want, and how hard it is sometimes, to accommodate them.

His mother was absolutely amazing!
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  #34  
08-29-2014, 08:28 PM
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Re: Baby With Harlequin Icthyosis

Found him.. Ryan Gonzalez, he was on Discovery channel's Medical Incredible..
All I can find are videos of the show he was on that were recorded using silly putty.
Maybe that will help me. I'm just starting to shoot video intentionally, instead of my hated digital camera shooting shit randomly!
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  #35  
08-29-2014, 10:30 PM
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Re: Baby With Harlequin Icthyosis

Here is another horrid disease, Raine Sydrome:

Oh dear Christ did you really have to post that
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  #36  
08-29-2014, 10:45 PM
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Re: Baby With Harlequin Icthyosis

Oh dear Christ did you really have to post that

Some like these things with breakfast.

It found me, as usual.

Some are so fake, but, this, to me, looked real.
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  #37  
08-31-2014, 09:48 AM
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Re: Baby With Harlequin Icthyosis

Some like these things with breakfast.

It found me, as usual.

Some are so fake, but, this, to me, looked real.
Most certainly looked real. Interesting video
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  #38  
09-01-2014, 09:05 AM
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Re: Baby With Harlequin Icthyosis

If the predator had a kid
  #39  
09-01-2014, 09:30 AM
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Re: Baby With Harlequin Icthyosis

Some like these things with breakfast.

It found me, as usual.

Some are so fake, but, this, to me, looked real.
Interesting and horrific; Raines is very very rare, however it seems that this woman had 4 previous births, none of the babies survived for long, and she said they looked similar to this one. Parents were first cousins by the way. Natures way of making sure incestuous relationships dont bear fruit. Horrifying isnt it?
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  #40  
09-01-2014, 03:51 PM
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Re: Baby With Harlequin Icthyosis

If there is no immediate cure for something like this, then stop being selfish and let the baby die. That baby is suffering way more than what you will be doing at the loss of it- if I had a child born with that, I would let it die than to continue to suffer. Poor thing :(


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