[DiamondSmiles]

By Didi Adams

14 October, 2016

When Paisley Morrison-Johnson was born 16 months ago, doctors worried she would suffocate. Her unusually large tongue, a symptom of an overgrowth disorder, threatened to block her airways and potentially choke the little girl. Now, the baby from Aberdeen, South Dakota, is happy and smiling for the first time ever after her second major surgery, according to Daily Mail.

Paisley was born with Beckwith Wiedemann Syndrome, a genetic condition that affects growth during childhood. The most noticeable symptom is usually an oversized tongue, but many babies with BWS also have red birthmarks called, “stork bites,” on their foreheads, according to a support group called How Big BWS. More importantly, the condition is associated with an increased risk of cancer, especially liver and kidney tumors.

In Paisley’s case, her tongue grew so big it no longer fit in her mouth, affecting her ability to breathe and eat. ”Doctors tried bottle feeding her but they couldn’t find any nipple that would help her,” mom Madison Kienow told Caters News Agency. “She had to have a [gastronomy]-tube fitted because not enough food was getting into her stomach.”

When Paisley was just one year old, her parents scheduled the first tongue reduction surgery to help her be more comfortable. But not long afterwards, the muscle grew back to almost its original size. They decided to try again, this time removing more than six inches of her tongue.

“Since recovering, she smiled for the very first time. I couldn’t believe it and was shocked by how beautiful my little girl looked,” Kienow said. “Now she’s not even having difficulties eating, which is a massive relief.”

According to the National Institutes of Health, children with BWS need to be monitored regularly for tumors, but the risk of cancer drops at about 8 years old. Any fast or asymmetric growth also slows over time, so Paisley’s symptoms should slowly go away.

“She’s like a completely new baby — her facial features look different, she smiles a lot and she has even getting close to saying her first words,” Kienow said. “We’re really confident about her future.”

[Davis916]

I have never seen anything so sad. Poor child!

[neilwatt]

It sounds like you know these parents? Never seen something like this before! I'm glad you explained it all. I'm sure she will have a diamond smile

[vagabond]

I've never heard of this, either. Tongue surgery must be incredibly painful. She's a cutie, alright.

[FunkPumpkin]

Thanks for the eloquent words of others, as I am speechless. May God help her through her troubles.

[kellyhound]

Looks very happy now in the last pic
Hope she goes through her first 8 years tumor free

[LadyCPlum]

Poor little sweetheart! Great to see they were able to fix it.

[T2]

Either way, she is absolutely adorable.

[Darkest Angel]

Sweet girl was even smiling in the first pic :-)

[The Krokodil]

First time I see this as well!! Thank you for sharing. I learn a lot from posts like this one