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#11
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07-20-2011, 08:03 PM
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| My Rank: PRIVATE Poster Rank:10062 Male Join Date: Mar 2010 Posts: 14 Mentioned: 0 Post(s) Quoted: 0 Post(s)
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Re: Any Neurologists On the Board?
I AM a doctor, but I'm a radiologist; unfortunately, I don't know much if anything of MS. It does come and go; maybe it'll go until you can see a neurologist.
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#14
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07-21-2011, 03:49 PM
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 ★ Legacy Member ★ Poster Rank:764 Female Join Date: Dec 2008 Posts: 1,046 Mentioned: 5 Post(s) Quoted: 11 Post(s)
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Re: Any Neurologists On the Board?
Keep falling on my ass Extreme pain in hands Dropping crap all the time Soooooooo sleepy Left foot doesn't do what I tell it to do Can't see for shit etc. Just your basic MS crap, however: My sodium and potassium is "potentially fatally low" (I got IV potassium day before yesterday so it's better) Thyroid hormones almost non-existant. I had the thyroid taken out 20 years ago (Graves' Disease) and this is the first time I've had bloodwork done that the replacement stuff wasn't doing what it's supposed to be doing. The local pharmacist went through all my drugs including OTC crap like aspirin and vitamins looking for some kind of interaction, but there isn't one. Fucking frustrating. |
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#15
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07-21-2011, 07:22 PM
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| My Rank: PRIVATE Poster Rank:5382 Join Date: Nov 2009 Posts: 47 Mentioned: 0 Post(s) Quoted: 1 Post(s)
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Re: Any Neurologists On the Board?
go to http://sci.rutgers.edu/forum/ they have nurses and Dr.s that deal with all things neuro
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#16
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07-21-2011, 07:25 PM
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 My Rank: LANCE CORPORAL Poster Rank:3097 Join Date: May 2010 Posts: 124 Mentioned: 0 Post(s) Quoted: 6 Post(s)
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Re: Any Neurologists On the Board?
I've had MS all my life so I feel your pain. Are you on any type of medications for your MS to help prevent relapses? I am currently on Betaseron which is an every other day shot. It seems to really help.
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#19
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07-21-2011, 09:53 PM
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| ★ Legacy Member ★ Poster Rank:764 Female Join Date: Dec 2008 Posts: 1,046 Mentioned: 5 Post(s) Quoted: 11 Post(s)
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Re: Any Neurologists On the Board?
I'm on rebif. 3 days a week. Was on copaxone when they first diagnosed me like 7 years ago. I'm trying to get ahold of this stuff called Acthar that is in the guinea pig stage as far as MS goes. I'm allergic to the IV solumedrol and I guess the acthar makes your body make it's own steroids or something. Found out the co-pay for it this afternoon. $1500ish for 5 days worth.  For that price it had better clean the house and give me the best orgasms ever.The Acthar chick hooked me up with these people: http://www.cdfund.org/patientassistance.html They're going to pick up my portion for the acthar and for the rebif as well. All my other stuff is cheap. |
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#20
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07-22-2011, 07:41 AM
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| My Rank: LANCE CORPORAL Poster Rank:3097 Join Date: May 2010 Posts: 124 Mentioned: 0 Post(s) Quoted: 6 Post(s)
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Re: Any Neurologists On the Board?
It really sucks that the medications have to be so freakin expensive especially since most of them are still experimental. Here is another website you might want to check out. http://www.msfocus.org/ They usually have the latest research and also have support groups.
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