4 Yo Boy Suffered from Cloves Syndrome Dies

**kellyhound** · #1 ● 05-05-2015, 08:20 AM

Aidan Jackowiak Smith suffered from Cloves Syndrome which affects one in 50 million people and has no known cure.

He was born with growths covering large areas of his body and suffered from brain damage and epileptic fits.

The little boy suffered from a severe form of the disease but his parents Karl Smith, 41 and Vikki Jackowiak, 37, were told there was no reason why he should have a low life expectancy.

As a baby, he had to undergo major surgery to remove a mass of fatty tissue in his face and neck which made it hard for him to breathe and swallow.

Aidan was due to start a a pioneering drugs trial in July that it was hoped could make further surgery unnecessary. His family together with developed had their home specially adapted for the boy.

But unfortunately he picked up a chest infection, which developed into the flu and then chronic lung problems.

Aidan was admitted to hospital where he was put on a ventilator. The youngster, who could could not talk or walk but who had started school, sadly died at hospital on Sunday.