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#1
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03-02-2011, 09:57 PM
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 My Rank: LANCE CORPORAL Poster Rank:2679 female Join Date: Sep 2009 Posts: 155 Mentioned: 0 Post(s) Quoted: 10 Post(s)
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Little Girl with Patau Syndrome
I found a blog about a family of which their daughter has a rare and fatal disease. "Our beloved daughter was born by Caesarean section 23/1 2010. We immediately saw little Wilda was unique in many ways. The 28/1 she was diagnosed with Full Trisomy 13th Our world collapsed, and now we try to get every day to work and enjoy every second we spend with Wilda. She is with us only on borrowed time. Wilda is doomed. She will not live long ........ She is severely retarded. She is probably completely deaf and blind. She requires oxygen around the clock. She probe fed.She has seizures But she is a life. A small individual with feelings.She has no visible defects in the brain or other organs. She is an infant who requires a lot of time and lots of love. Who has the right to deny her a dignified life the moment she is with us?" Patau syndrome is a rare syndrome that involves a severe mental disorder, the syndrome is due to an incorrect number of chromosomes in the body celler.Pataus syndrome usually means a miscarriage or severely shortened lifespan. Most children with Patau live no longer than a month,Patau syndrome affects approximately one in 10,000 live births. Their blog http://wildavaregenangel.blogspot.com/  ·  ·  ·  ·  ·  ·  · |
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#2
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03-02-2011, 10:15 PM
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 My Rank: MAJOR Poster Rank:160 Female Join Date: Dec 2009 Posts: 9,807 Mentioned: 0 Post(s) Quoted: 7 Post(s)
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Re: Little Girl with Patau Syndrome
It looks like Ron Pearlman was the daddy.
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#3
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03-02-2011, 10:32 PM
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 ★ Legacy Member ★ Poster Rank:111 Join Date: May 2009 Posts: 14,074 Mentioned: 44 Post(s) Quoted: 3720 Post(s)
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Re: Little Girl with Patau Syndrome
God Bless her and her parents. I hope she isn't suffering. |
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#4
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03-02-2011, 10:35 PM
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| My Rank: MAJOR Poster Rank:160 Female Join Date: Dec 2009 Posts: 9,807 Mentioned: 0 Post(s) Quoted: 7 Post(s)
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Re: Little Girl with Patau Syndrome
 eh?? eh???? |
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#5
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03-02-2011, 10:41 PM
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 My Rank: LANCE CORPORAL Poster Rank:2977 Female Join Date: Apr 2009 Posts: 132 Mentioned: 0 Post(s) Quoted: 0 Post(s)
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Re: Little Girl with Patau Syndrome
Okay sorry but the "severly retarded" sentence did make me giggle a bit, due to the abuse of that word. I can't take that word serious. But however, it is really sad. I hope they will some day come to find a cure for this. I mean, 1 of 10.000 is actually pretty many, when you come to think about it. |
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#6
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03-03-2011, 01:56 AM
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 My Rank: LANCE CORPORAL Poster Rank:1763 Male Join Date: Jun 2009 Posts: 296 Mentioned: 0 Post(s) Quoted: 9 Post(s)
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Re: Little Girl with Patau Syndrome
 God, you're a mean son of a bitch!!!  |
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#9
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03-03-2011, 04:19 AM
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 My Rank: MASTER SERGEANT Poster Rank:479 male Join Date: Nov 2009 Posts: 2,191 Mentioned: 11 Post(s) Quoted: 591 Post(s)
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Re: Little Girl with Patau Syndrome
i hope there is a mirical...all the best to parents and little one.x
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