[Faline]

Huntington's disease (HD) is a neurodegenerative genetic disorder that affects muscle coordination and leads to cognitive decline and psychiatric problems. It typically becomes noticeable in mid-adult life. HD is the most common genetic cause of abnormal involuntary writhing movements called chorea, which is why the disease used to be called Huntington's chorea.

[Faline]

Huntington’s disease damaged brain.

[Jere]

my wife has a patient with that its a sad thing to see anybody go through

[Sharon]

Terrible condition

[LadyCPlum]

House was honored for educating about this diseases when "13" was diagnosed with it on the show. I would hate to completely lose all motor control of my body, the feeling of helplessness....if it ever progressed that far I'd just beg someone to let me go.

[DonB]

My cherished dad died of Huntington's three years ago on the 9th. I still miss him greatly. He was "lucky" enough to have had a mild case. He lived to almost 73.
My sister and I have a 50/50 chance of getting the disease. Neither of us has been tested.

[LadyCPlum]

Originally Posted by DonB ↗

My cherished dad died of Huntington's three years ago on the 9th. I still miss him greatly. He was "lucky" enough to have had a mild case. He lived to almost 73.
My sister and I have a 50/50 chance of getting the disease. Neither of us has been tested.

Is it because you'd rather not know...that you don't want to live your life with that albatross around your neck? (If it's too personal you don't have to answer, I'm just curious. I'm not sure I'd want to know, it might make me change my lifestyle, turn me into someone I don't want to be....)

[DonB]

Originally Posted by LadyCPlum ↗

Is it because you'd rather not know...that you don't want to live your life with that albatross around your neck? (If it's too personal you don't have to answer, I'm just curious. I'm not sure I'd want to know, it might make me change my lifestyle, turn me into someone I don't want to be....)

Yes, I would rather not know. I will know eventually if I start exhibiting symptoms, and if I hit age 50 without any symptoms whatsoever, then I can fairly safely assume I don't have it.
Thankfully, I hardly ever think about it in relation to me, but when I think about what my dad went through I get really sad. At the end he was confined to a bed, immobile, with his limbs contracted against his body, but he always managed to slightly lift his hand for me to grasp when I walked into his room at the nursing home. He was a great man and deserved better. But really, who deserves this disease?
We were all at his bedside when he passed away. Unlike what many people say about experiencing the death of a loved one, I didn't find it a peaceful experience at all. It was devastating and painful, and the only solace for me would be if I knew he felt our love as he breathed his final raspy breaths.

[HeadlessHorseman]

Looks like it rots. I can see why you would loose control.

[LadyCPlum]

Originally Posted by DonB ↗

Yes, I would rather not know. I will know eventually if I start exhibiting symptoms, and if I hit age 50 without any symptoms whatsoever, then I can fairly safely assume I don't have it.
Thankfully, I hardly ever think about it in relation to me, but when I think about what my dad went through I get really sad. At the end he was confined to a bed, immobile, with his limbs contracted against his body, but he always managed to slightly lift his hand for me to grasp when I walked into his room at the nursing home. He was a great man and deserved better. But really, who deserves this disease?
We were all at his bedside when he passed away. Unlike what many people say about experiencing the death of a loved one, I didn't find it a peaceful experience at all. It was devastating and painful, and the only solace for me would be if I knew he felt our love as he breathed his final raspy breaths.

Thanks for sharing that. It is nice to read something touching on DR on occasion. *cyberhugs*