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#21
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07-29-2015, 12:48 PM
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 ★ Legacy Member ★ Poster Rank:569 Female last I looked Join Date: May 2015 Posts: 1,700 Mentioned: 14 Post(s) Quoted: 831 Post(s)
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Re: Facial Arteriovenous Malformation, Necrosis, and Exposed Skull.
Wow, hope everything works & you don't have to deal with it anymore.
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#22
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07-31-2015, 01:26 AM
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 My Rank: PRIVATE Poster Rank:6989 Male Join Date: Jan 2010 Posts: 29 Mentioned: 0 Post(s) Quoted: 0 Post(s)
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Re: Facial Arteriovenous Malformation, Necrosis, and Exposed Skull.
sorry for what you are going though, God bless you
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#23
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07-31-2015, 08:18 AM
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 My Rank: LANCE CORPORAL Poster Rank:2416 Male Join Date: Jan 2013 Posts: 186 Mentioned: 0 Post(s) Quoted: 17 Post(s)
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Re: Facial Arteriovenous Malformation, Necrosis, and Exposed Skull.
Now I'm curious about touching your skull. Was it a really weird sensation or was it just like touching bone? |
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#25
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07-31-2015, 11:07 PM
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| My Rank: PRIVATE Poster Rank:8328 Join Date: Oct 2013 Posts: 21 Mentioned: 0 Post(s) Quoted: 5 Post(s)
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Re: Facial Arteriovenous Malformation, Necrosis, and Exposed Skull.
Thank you for posting this and for educating us on AVM. I hope you are doing better and wish you a successful recovery! |
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#26
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08-03-2015, 01:58 PM
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| My Rank: PRIVATE Poster Rank:13441 Join Date: Oct 2009 Posts: 7 Mentioned: 0 Post(s) Quoted: 2 Post(s)
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Re: Facial Arteriovenous Malformation, Necrosis, and Exposed Skull.
It was just like touching bone. Although it did give me a weird feeling because I was aware that I was touching my own skull..  The necrosis was a result of the AVM treatment more so than the AVM itself. It sure was an experience, though. It started going purple and mushy, I told my aunt I thought it was necrosis and I should go to the ER, she disagreed and didn't want to take me.. I went, called her from the hospital and said "Yep, my face is rotting off." |
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#27
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08-03-2015, 03:46 PM
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 My Rank: PRIVATE FIRST CLASS Poster Rank:4405 Join Date: Apr 2014 Posts: 67 Mentioned: 1 Post(s) Quoted: 4 Post(s)
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Re: Facial Arteriovenous Malformation, Necrosis, and Exposed Skull.
My stepdaughter was born with a nasty AVM in her brain. She suffered from developmental delays and physical issues. Doctors thought she wouldn't live to see 2 yrs old. She surprised everyone, she learned to walk, talk, etc. She was quite a character. Sadly, she started to decline and at age 15 she died of a brain aneurysm.
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#28
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08-03-2015, 07:01 PM
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| My Rank: PRIVATE Poster Rank:13441 Join Date: Oct 2009 Posts: 7 Mentioned: 0 Post(s) Quoted: 2 Post(s)
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Re: Facial Arteriovenous Malformation, Necrosis, and Exposed Skull.
I am very sorry about your stepdaughter.  Brain AVMs can be devastating, and doctors know surprisingly little about how to treat them.
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#29
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08-03-2015, 09:54 PM
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 ★ Legacy Member ★ Poster Rank:111 Join Date: May 2009 Posts: 14,074 Mentioned: 44 Post(s) Quoted: 3720 Post(s)
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Re: Facial Arteriovenous Malformation, Necrosis, and Exposed Skull.
You certainly have you hands full with 'your cross to bear'. May you continue to be granted the Grace needed to deal with it day to day. |
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#30
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08-05-2015, 12:40 AM
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| My Rank: PRIVATE Poster Rank:8329 F Join Date: Jan 2014 Posts: 21 Mentioned: 0 Post(s) Quoted: 2 Post(s)
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Re: Facial Arteriovenous Malformation, Necrosis, and Exposed Skull.
You are metal as fuck to go through this. Sorry for your situation.
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